31st March 2010

If you or your partner has recently been diagnosed with dementia, Queensland University of Technology (QUT) researchers would like to hear from you.

Jennifer O'Brien, of QUT's School of Psychology and Counselling, said a dementia diagnosis could have a profound impact on the way partners interact and view their future.

"We're hoping to understand what happens at this time and see what leads to better coping," she said.

Ms O'Brien, a Masters student, and Dr Zoe Hazelwood are seeking the views of people with a recent diagnosis of dementia, as well as their partners.

"A lot of research is conducted into how family members respond to diagnoses but it is relatively rare to ask the person who has just been diagnosed," Ms O'Brien said.

"We are seeking the views of both the person diagnosed and their partner because we know that just because you receive a diagnosis doesn't mean you're unable to talk about your experiences and it doesn't mean that your relationship is less important."

The research findings will help with the development of programs to assist couples at this challenging time.

Participants should be couples, not necessarily married, where one partner aged over 65 has been diagnosed with Alzheimer's disease, vascular dementia or a form of frontotemporal lobar degeneration in the past six months.

Both partners would be expected to complete a written questionnaire about their relationship and their response to the diagnosis.

Ms O'Brien said the questionnaires could be mailed to participants or they could be completed at QUT's Kelvin Grove campus.

Couples who would like to complete the survey should contact Jennifer O'Brien on 0419 724 995 or j13.obrien@connect.qut.edu.au

Media contact: QUT media officer Elizabeth Allen on 07 3138 4494 or e1.allen@qut.edu.au

** A high res pic of Jenny O'Brien is available

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